Tuesday, May 20, 2014

Crazy, Crazy

I just wanted to do a quick blog post to let you all know that things have been kind of crazy on my end and will be for a while. I'll be trying to blog as much as possible, but honestly, I can't even remember what day it is today. Seriously, what day is it? Anyway, starting soon, for a while, I'll be taking a break from this blog completely and will only be posting intermittently on my book/writing blog. Then I will do my best to get everything to a set schedule again - and hopefully even post YouTube videos. For now, though, please just bare with me. Thank you! Have a wonderful day!

<3 Amanda Leigh

Tuesday, May 13, 2014

Things That Make Me Happy

My fiancĂ© Matt. 





Listening to music. 




Arts and Crafts. 

Darkroom and digital photography. 

Watching LOST. 


Making a new recipe that turns out wonderfully. 

Cooking for other people. 

Chicken, prepared lots of different ways. 



Sometimes coffee. 



Fundraising/donating to causes that I believe in. 

New books. 

New journals. 

Publishing a new book. 

A great review of one of my books. 

People that I love. 

Sailor Moon. 

Characters that I love. 

<3 Amanda Leigh

Sunday, March 23, 2014

Music Review ~ Paramore by Paramore


Title: Paramore
Artist: Paramore
Release Date: April 5th 2013
Released By: Fueled by Ramen, Warner Bros
Produced By: Justin Meldal-Johnsen, Taylor York (4 tracks)  

I can't remember when I discovered Paramore. I think that it was in high school. Either way, I loved them from the second that I discovered them. (Well, you know what I mean). 

I got their newest album pretty close to when it first came out. I really love the sound on this one. There is less hard rock than their other albums but it still leans toward rock and I still really like it. There are also tracks that are more like ballads that are lovely. And there are shorter tracks called "Interludes". I quite enjoy these as well. For a couple of reasons. One: They are good tracks. Two: They're perfect for if you want to listen to somehting quickly. For example, if you're in the car and don't have time for a whole song.

As for my favorite songs on the album, those are as follows:

One: "Now"
Two: "Grow Up"
Three: "Still Into You" 

<3 Amanda Leigh

Thursday, March 20, 2014

How I Made My Book Jar

A while ago I did a post where I shared several photos. (You can find that post here: http://lifeofachronicbibliophile.blogspot.com/2014/02/in-which-i-share-many-photos.html). One of these photos was of my Book Jar. I got this idea off of the YouTube channel Bookables. I'm not sure where this first originated though. So today, I thought that I would share with you how I made my Book Jar. It's quite simple, really.

Step One:
Find a jar that you like that is also big enough to fit all of the slips of paper that you want to. Or use some other type of container. My mom found this really cool one with a mini chalk board on it.

Step Two:
Decorate said jar or container. Since mine has a little chalk board, I wrote "Book Jar" in colored chalk. I also put some stickers on the outside of the jar. 

Step Three:
Begin writing down all of those books that you plan to put into the jar. I did this on colorful card stock. I also saw Little Book Owl (YouTube Channel) made an Excel Spreadsheet, printed that out and used a paper cutter to cut the slips of paper out. 

Step Four:
Fold up the slips of paper and put them in your book jar. If desired, shake to move the slips of paper around. 

Step Five:
Begin enjoying your book jar. Next time you don't know what to read, shake that jar up, put your hand in and pick out a random sheet of paper! This is actually quite fun to do and a great way to pick a book to read!

Have fun making your won book jars! f you do, post a picture to this blog's Facebook page: https://www.facebook.com/LifeofaChronicBibliophile. I would love to see your book jars! Enjoy! :) 

<3 Amanda Leigh

Tuesday, March 18, 2014

Sailor Moon. Yes, Sailor Moon.

Growing up, I loved Sailor Moon. Absolutely loved. I loved the show, of course. And then I specifically loved the girl Sailor Moon a.k.a. Princess Serena. Also, I was just crazy about about Tuxedo Mask/Prince Darien/Darien. (He was just always very charming and gallant to me. Even when I didn't know what gallant meant :). 

I just recently started watching the entire series in order from start to finish. I still love this show just as much as I did back then. I wanted to sort of reflect on why I love it so much.

So, when I was little I was obsessed with Sailor Moon. I wanted to be Sailor Moon. Here's a picture of me pretending to be Sailor Moon.


To me, as an adult, the show represents the power of love and friendship. As well as the importance of justice and doing what's right. From the episodes that I remember there was always a "Sailor Says" segment. The Sailor Scouts would be teaching one important lesson or another. I know that's probably "lame" to some people, but I appreciate it as an adult and I loved it as a child. Partially because this is what Sailor Moon would do, sure. But still. Another thing, is that the Sailor Scouts just seem so confident to me. That is not to say that they don't 'slip up' in this department, but who doesn't? I always thought that they were so brave, too. And the best part of that is that they still get scared. You can be brave while still being scared. So, there you have it, the reasons that I love Sailor Moon. (I will admit, that the draw of discovering that you are really a princess from the moon destined to find her long lost love again is pretty cool, too. Especially to an eight year old, I'm sure). ;) 

Anyway, I'm sure that I will always love Sailor Moon. :) 

<3 Amanda Leigh

Thursday, March 6, 2014

My Life Story in 250 Words or Less ~ Semi-Re-Run from Girl With a Pen and a Dream

I found this old post on my other book/writing blog, Girl With a Pen and a Dream http://www.girlwithapenandadream.blogspot.com/ , and I thought that it was a perfect post to share on this blog since this blog is more about my personal life. This was for the event Blog Every Day in May in 2013. I didn't do that but I did post this one thing in June of 2013 and I thought that I would share it with you all today.

My Life Story in 250 Words or Less
I seemed like a healthy baby. I weighed 18 pounds at 3 months. Then I started losing weight. I showed other symptoms. After 2 weeks in the hospital I was diagnosed with Nephropathic Cystinosis at 9 months. The doctors told my parents I wouldn't live to my sixteenth birthday.

I was a happy child. I couldn't play the way the other children did so I found my own way. I made up stories. Whether it be with my dolls or reciting the stories to my mom (and then me drawing the pictures), that was my playtime. That and my mother read to me often. At eight I decided I wanted to be an author. I was in the hospital a lot as a child. I was lucky to find friends who understood.

 Two years of high school are a blank to me because of all the pain medicine I took. I had major corrective surgeries on my legs those two years. Against all odds I made it to sixteen. That was a big celebration.   

I went to Pace University and was in the hospital several times during college as well. Summer 2012 I  published my first book. That December was my worst hospital stay. Tetany, hallucinations. . .After I got out I met someone who completely understood. He has Cystinosis too. He’s now my fiancĂ©. I graduated college in May. Again, against all odds. I’m nearly 23 years old now. Seven years older than doctors thought I would ever be.        

<3 Amanda Leigh

Friday, February 28, 2014

Happy Rare Disease Day!

Today is Rare Disease Awareness Day! There are many more rare disease than one might think. I just found out today that for a disease to be qualified as rare in the United States less than 250,000 people have to have it. There are approximately 500 people with Cystinosis living in the United States. Worldwide there are abut 2,000. Today I'm going to share some links with you.

My blog post talking about Nephropathic Cystinosis and my experience with it: http://lifeofachronicbibliophile.blogspot.com/p/about-nephropahic-cystinosis.html 

The Cystinosis Research Network's website: https://cystinosis.org/ 

More information about Cystinosis from the Cystinosis Research Networkhttps://cystinosis.org/what-is-cystinosis/symptoms-treatment

An auction going on today on Instagram where the proceeds will go to benefit the Cystinosis Research Network. Hosted by the blog A Happy Girl (http://www.ahappygirl.com/). Just go to her Instagram account (ahappygirl) click on the auction bundle that you're interested in (these are her most recently posted pictures) and place your bid right there in the comments section! :) I've donated one of my tote bags! http://instagram.com/ahappygirl 

The What is Cystinosis Page on A Happy Girl's Blog: http://www.ahappygirl.com/p/what-is-cystinosis.html 

In honor of Rare Disease Day one of my best friends, Yulia, is highlighting Cystinosis and my work on Imgur. <3 You can check that out here: http://imgur.com/gallery/Sz858 

The Cystinosis Research Network -Ways To Help:

Shop (15% of all purchases go directly to the Cystinosis Research Network): https://cystinosis.org/how-to-help/store

Sign Up for a Membership with the Cystinosis Research Network (for immediate family, extended family/friend or professional): https://cystinosis.org/how-to-help/signup

Were those enough links for you? :) I hope that you learned about Cystinosis and that maybe you check out some of the other links as well. Maybe you'll bid on an auction bundle! Or help us spread the word by sharing this post or one of the links above! You can show support for Rare Disease Awareness Day by wearing jeans! (Or hey, something denim!) We appreciate any help that you can give! Every little bit counts, no matter how big or small. Oh and, there may be a fundraiser from me in the near future. So keep an eye out for that! Thank you so much everyone! :)

<3 Amanda Leigh