Sunday, February 28, 2016

Rare Disease Day + Announcing a New Project!!

I've posted about Rare Disease Day before on this blog. I believe that it is an important day to be recognized so that we can spread awareness about rare diseases in the world. People are effected by them. Spreading awareness could always help so if you read this post any shares would be greatly appreciated.

 This year I got in touch with Cameron Von St. James to partner up on my Rare Disease Day post. Cameron's wife is a survivor of a rare cancer called Mesothelioma. This type of cancer is caused by exposure to asbestos fibers. Asbestos has been known to cause cancer for many years, but there is still no ban on it in many countries. Unfortunately, most diagnosed with Mesothelioma are only given a few months or years to live. As you know, I have a condition called Nephropathic Cystinosis (click on the link for more information.) There is also information in the below graphic. We decided to merge our missions and share some graphics that have more information on rare diseases as we both feel it is an important thing to spread awareness about. I also have a video from NORD (National Organization for Rare Diseases) in this post. At this end of this, after this information, I'm going to be making an announcement about a new project that I'm working on because I believe that it pertains to this. 

Don't forget, to show your support for Rare Disease Day (the last day of February) wear denim!!

NORD's Video: https://www.youtube.com/watch?v=NEIkpt4Gkzo 

Credit: Mesothelioma Cancer Alliance                                 
  

Announcement:

I'm taking part in a new project that I hope I will be able to share with you all in the not too far off future. I partnered up with a mom of a young girl with Cystinosis to put together a collection of mini memoirs from people in the Cystinosis community. People with Cystinosis and caregivers alike. We want them to be able to share their stories and hopefully give people some hope. Even people who are not directly effected by Cystinosis. In addition, all of the proceeds from the book will be going to Cystinosis research. So be on the lookout for that project!! Hopefully there will be a cover to reveal to you not too long from now!! 

_______________________________________________________________________________

Check out NORD's site and learn some more about rare diseases. You may even know someone effected by a rare disease and just not know it. Since these diseases are rare, there isn't lot of awareness about them. So if you could share this post and help us spread that awareness that would be wonderful!! Don't forget to wear that denim!! 

Please consider donating to Cystinosis Research and to Mesothelioma research.

Thank you!! 
Thursday, February 11, 2016

First Giveaway: Leonie Dawson Wall Calendars

 

I haven't posted anything on this blog in a long time. So my first post of the new year will be a giveaway!! :D (I promise that I'll get my New Year's Goals post up soon.) 

So this year I ordered some workbooks for myself. I decided that I'm going to do all of them and see which one I like the best. I will also be doing a series of posts about these workbooks to let you all know what I like best. But one of the workbook packets that I ordered was the Leonie Dawson one. This is one that is very popular and a lot of people seem to love them. I ordered the whole package, so to speak. One of the things that it came with was two wall calendars. I looked them over and while I like some of the things on them but ultimately they won't really work for me. So what better thing to do with them than to give them away? 

There are two of these wall calendars so there will be two winners. Must be 18 years or older to enter or have parental permission. Giveaway is Continental US only. I'm sorry, shipping is crazy. :/ To enter just do any or all of the rafflecopter options below. Giveaway is open until February 28th at 11:59 p.m. EST. Good luck!! 

a Rafflecopter giveaway
Friday, June 19, 2015

Gratitude Journaling

A big thing that I've seen in the last few years is gratitude journaling. It comes in a lot of different forms. People write one thing a day that they're thankful for or three things or five things or maybe write a couple of pages about the things that they're thankful for.

I believe that taking a little time each day to acknowledge and appreciate the things that we are thankful for is a great thing to do and can help with our outlook on life. It can make us really see all of the good things that we do have in our lives. It can take our focus from the bad to the good for a while to remind us of the good things that we do have.

I myself don't keep a dedicated gratitude journal. However, I do have a planner that I use pretty much every day. Most of the inserts that I use in my planner I design myself and I try to work in some sort of section for a daily or weekly gratitude.

What about all of you? Do you take time, in some way or another, throughout your day (or even week) to stop, acknowledge and appreciate the things that you are grateful for? I would love to know if and how you do. As well as your thoughts on gratitude journaling in general. Let me know in the comments!! :)

Have a beautiful day!!

(Enjoy the little things). 

<3 Amanda Leigh
Thursday, March 19, 2015

A Little Update

Hello!

I just wanted to give you all a little update about some things that are going on. :) 

I've been working on releasing my fiction debut, My Heart is Yours. It is going to be coming out this year. I've been doing final edits and working on promotion. Oh and I have an amazing cover for it! Designed by http://coveritdesigns.net It is an absolutely amazing cover and fits the book perfectly. The cover reveal is scheduled for 3/23/15 and is being organized by http://www.stuckinbookspa.com Also, the book is up on GoodReads if you're on there and feel like adding it to your To Read List. https://www.goodreads.com/book/show/23567076-my-heart-is-yours I'm very excited (and nervous) to let this story out into the world!

Also, I've been working on a YA Paranormal trilogy. I've written the first drafts of the first two books, am planning the third book in the trilogy and am also planning a short story to go along with it. This series has a lot of potential for many stories. Next month I'm planning on participating in Camp NaNoWriMo and getting the first 10,000 words written - at least. 

I've also opened up an Etsy shop that has some of my photography on it. I will be adding more things to this and working on it more. 

There is also something else that I've been thinking of working on. ;) 

Plus, I've been keeping up my book/writing blog and all of my social media accounts. 

I hope that you're all doing well! Have a beautiful day! 

<3 Amanda Leigh
Saturday, February 28, 2015

Re-Run: Happy Rare Disease Day!!

Today is Rare Disease Awareness Day! There are many more rare disease than one might think. I just found out today that for a disease to be qualified as rare in the United States less than 250,000 people have to have it. There are approximately 500 people with Cystinosis living in the United States. Worldwide there are abut 2,000. Today I'm going to share some links with you.

My blog post talking about Nephropathic Cystinosis and my experience with it: http://lifeofachronicbibliophile.blogspot.com/p/about-nephropahic-cystinosis.html 


The Cystinosis Research Network's website: https://cystinosis.org/ 

More information about Cystinosis from the Cystinosis Research Network:  https://cystinosis.org/what-is-cystinosis/symptoms-treatment

The What is Cystinosis Page on A Happy Girl's Blog: http://www.ahappygirl.com/p/what-is-cystinosis.html 

In honor of Rare Disease Day last year one of my best friends, Yulia, highlighted Cystinosis and my work on Imgur. <3 You can check that out here: http://imgur.com/gallery/Sz858 

The Cystinosis Research Network -Ways To Help:



Shop (15% of all purchases go directly to the Cystinosis Research Network): https://cystinosis.org/how-to-help/store

Sign Up for a Membership with the Cystinosis Research Network (for immediate family, extended family/friend or professional): https://cystinosis.org/how-to-help/signup

Were those enough links for you? :) I hope that you learned about Cystinosis and that maybe you check out some of the other links as well. Maybe you'll bid on an auction bundle! Or help us spread the word by sharing this post or one of the links above! You can show support for Rare Disease Awareness Day by wearing jeans! (Or hey, something denim!) We appreciate any help that you can give! Every little bit counts, no matter how big or small. Oh and, there may be a fundraiser from me in the near future. So keep an eye out for that! Thank you so much everyone! :)

<3 Amanda Leigh
Friday, February 20, 2015

New Blog Design!!

Hey everyone!! I just wanted to do a quick post to announce my new blog design. I absolutely LOVE it!! It's just what I was looking for for this blog. I got this design from Blogaholic Designs. I would definitely recommend them. I'm really happy with this new design. I hope that you guys like it. :)

Also, I'm going to try to get back to posting on this blog regularly. I've been getting back into the swing of things and the first things that I had to focus on were my writing/editing and my book/writing blog. (http://girlwithapenandadream.blogspot.com). Which I also just got a new design on; a custom design from Imagination Blog Designs. I absolutely ADORE it. Anyway, once I get those things down I'll be trying to post more regularly on here. I hope that you are all having a great 2015. Happy Belated New Year and Valentine's Day!! ;) <3

<3 Amanda  Leigh
Tuesday, January 6, 2015

Happy New Year!!

Happy New Year!! I know that this post is late, but I always do it. I did alright with my New Year's Goals for 2014. I didn't complete all of them and they did get switched around, but that's okay. It happens sometimes. I did write the first draft of two books in 2014, so that's pretty good. Hopefully, I'll complete all of my 2015 Goals. And here they are:

2015 New Year's Goals:

1. Read 20 books in 2015.

2. Release My Heart is Yours.


3. Edit Beauty of the Dark and send to my critique partner.


4. Edit book 2 in my Beauty of the Dark trilogy and send to my critique partner.


5. Write the first draft of book 3 in my Beauty of the Dark trilogy.


6. Finally release that 'secret project' sometime this year.


Okay, those are all of my goals. What about you? Do you have any goals for 2015?


<3 Amanda Leigh